Nov 13, 2008
Quick Family Update
A few months ago, we found out the devastating news that our son suffers from cystic fibrosis (CF), a genetic disease that, as-of-yet, has no cure. Since his diagnosis, we have started a regimen of medication and chest and airway physical therapy that (although time-consuming ) helps manage the symptoms of his disease. It's been a rough couple of months, both for our little guy and for us parents.
With the winter season approaching, we are nervous about colds and flu, especially since CF makes him more susceptible to serious complications from viruses and bacteria. Despite the fact that he's suffering from a nasty cold lately (he's had 2 well days in the past 3 weeks--sigh), our son is as talkative and active as ever. He wakes up every morning naming anything he sees over and over again: "a light, a light, a bed, a bed . . ." His world has opened up now that he can repeat and mostly understand English.
A couple days ago, I took my guy out on a quick location scouting trip around the neighborhood. (It was one of his well days.) And despite a bit of a runny nose, we got some pretty cute photos for me and the grandparents. Incidentally, this is the first time he climbed up to the top of the slide and slid down it all by himself!